Jan 31 2007

As effective as a mud hut in a tsunami.

Tag: Diarymary @ 4:00 pm

An historical day for me tomorrow in that I will accompany No 3 grand child off to his first day of school.  Always very memorable by association,  as I remember giving my distraught daughter a promise in 1999, that I would try to survive long enough to take No 1 grandchild to his first day at Primary School….he was nine yesterday. 

And I continue to survive and thrive against all expectation, mine and others!

Further to my comment yesterday about palliative care, a letter in today’s Age likened it to “as effective as a mud hut in a tsunami.”

Don Swanson of Warrnambool says “There does come a time when death is a friend is the only escape hatch.  The dying intuitively know this.   His wife, Linda begged him to lower her into a fountain and permit her to die, but he couldn’t bring himself to help her in this and so she went to a palliative care unit. 

Juliette Hughes asserts that “people only opt for death when they are desperate, lonely, depression and in pain.”  Peter Shaw of Brighton, in a letter captioned “A Reasoned Choice”, tells her that she is wrong.  Many of us, not necessarily religious, but sensible, mature, perfectly in control, good and responsible citizens.  One reason for suicide may be anticipation of pain and incompetence, but quite likely a sense of a life accomplished and coming to a conclusion.   Mr Shaw, like myself, strongly resent do-gooders placing obstacles in our way.  Their activities are illegitimate interference with our liberty and autonomy in a matter most central to our life.

Mind you, desperate (with relief from the relentless pain impossible without drug overdose), lonely, (because you alone understand the sheer degree of pain within your body) depression (because relentless pain makes one very unhappy, sad, screamingly so, if fact for some) and In Pain  (the type that paralyses the mind, to be totally enveloped by it, to the exclusion of all other senses)

Can’t think, concentrate, eat, talk, read a book, watch TV, whimper, cry – yes all of those feelings that make us humans wish we could have the sympathy a dog would be shown under similar stress indicators…..and an injection of Nembutal to end it all, once and for all.

I wonder to what degree Jim Grotty of Sunbury, Professor Margaret O’Connor, Juliette Hughes or Thomas A Watkins of Burwood, all recent letters writers to The Age,  speak from their own personal experience of pain.

We are speaking about voluntary euthanasia.  We should be talking about “Choice for the individual’s needs”

I like the wit of Pat Lester of Ringwood East who writes, 

“According to The Age Readers Poll (30/1) it looks like anti-euthanasians are dead wrong”  (Vote 84% in favor, 16% against)


Jan 30 2007

Letters and comments are flooding into the newspapers by the hundreds

Tag: Diarymary @ 11:20 am

Letters and comments are flooding into the newspapers by the hundreds.  According to The Age newspaper poll today there was 84% in favour of Voluntary Euthanasia with 16% against.   Among the “against” would be Professor Margaret O’Connor, President Palliative Care Australia who in her letter, headed The Caring Option, in opposition believes Dr Nitschke should be serious and extend his campaign in favour of what she wants for herself.  More power to the Palliative Care Lobby – she tells us that while there remain inadequacies in the system as well as funding deficiencies there is no room for debates about changing the laws.

Professor O’Connor doesn’t yet understand that not all solutions are found in funding, facilities, staffing, or talking the soft talk of acceptance about the dying process.    The point being made is that,  people are reaching a stage in technological medical procedures that can keep people breathing indefinitely.  Palliative care caters for this method of anti dying strategies in that,  the process is still prolonged by unnatural means leading up to palliative care.  Medications are still provided to the unconscious through drips.

Is Professor Margaret O’Connor really that simplistic about understanding our message?.   Some of us, do not in fact, want palliative care at the end of life as a choice.  We don’t want the journey down that treadmill of nursing home, hospital, hospice and palliative care unit before death.      We can’t see the purpose of lying in a bed indefinitely waiting to die.  Because living indefinitely,  is no longer pertinent at the time of our dying.  Some of us would prefer to die swiftly and easily than lie besieged by care givers checking our tubes, our temperature, tube feeding and even wiping our bums!.   Without the hope of an improvement to the ailment that put us there in the first place, that provides purpose, however, what is the purpose of continuing treatment when there is no hope of recovery.

The Palliative Care Units, the Hospitals, the Nursing Homes all have a financial incentive for promoting the sanctity of life concept.  It rolls easily off their tongue because they are not living the pain!!    Religious organisations frequently operate all three of these services which locks people into Mission Statements not of their choosing.  It is much easier to be an observer of someone else in pain, and sympathise than actually live the pain oneself.

The patient’s wellbeing, welfare and wants, are the most important criteria in all of the debate, or at least, they should be.

Rarely have I ever wished ill on another living person, but by God, if there is one in Heaven, I do hope those who fight the hardest against legislative change making it easier for the rest of us…learn from personal experience the humility that is necessary to understand why another person may not want to suffer.   When I read of Mr Abbott our doubtful Federal Minister for Health  saying the Elderly may be “Bumped Off”…He continues to use the rhetoric of this Government that tells us there is a terrorist under every bed!….Again he uses the language of the Catholic Church in promoting fear and retribution for those who aren’t actually quite sure about their rights and what the Law can do to protect them.   Mr Abbott, I feel,  is a most deceptive representative of the people.  


Jan 29 2007

No man can serve two Masters – God or the People – but not both!

Tag: Diarymary @ 8:30 am

I am bemused by the “crying foul”  of Mr Tony Abbott (Federal Liberal Health Minister),  terribly worried about Mr Kevin Rudd, commandeering “God” for his OWN political agenda.   I already knew when Mr Rudd spoke the first time and spelt out for us all “that the Liberal Party did not have a monopoly on God”  that the Labor Party was taking a deplorable position, for many of us within the Party ranks.   Last May (?) in Mr Rudd’s initial interview about faith and politics – telling us all how important Christian Values were in his own life, he was just mouthing what Mr Abbott had said previously,  along with Kevin Andrews in “putting paid” to the NT Legislation.  

I would have preferred we knew nothing of their religious “belief” and they all just manage to run Government Business based on the facts before them, assessing the good and evil of a potential legislation.  By basing decisions on the facts of a matter, no one segment of the community is alienated by another’s personal persuasions when it comes to making Laws for the whole!

One important way of solving this problem of religious beliefs encroaching into political life is to have politicians state their degree of religious fervor, prior to endorsement as a Candidate so that the general public will know, prior to election their stated position.   Currently it is done for financial interests, but religious fervor is more dangerous by stealth,  because faith, unlike Shares, is an intangible belief system that can impact on laws that affect everyone else regardless. 

Hitler had a belief system which beggared belief until he had all his cronies in place that supported that view and then no one else was permitted a different one.  When “doors of openness”  are closed to the public all manner of devious Party Room dealings can occur particularly when our Opposition is in bed with Government on the fundamental belief system that is known as,  religion.  The Pope, the Archbishop, the Rabbi can threaten the wellbeing of their soul unless Politicians govern according to a particular religious view point.   And when it comes down to it, many of the more popular religions base their wealth on the man that will deliver what they want to hear.

If I learnt nothing else in my first twenty years of life, I learnt how Religion is constructed to feed on people’s fear of hell and damnation.   When one is young and naive, their youth is their excuse.   However, grown men in Parliament must have the ability to think and be responsible citizens governing for their constituents without fear or favour.   Not their fear of God and not their favour of the Churches.   No man can serve two Masters – God or the People – but not both! 

A letter sent by Choice to the Age last night:

Until Parliament gives statutory recognition to respecting the patient’s wishes for end of life choices, we the patient, can’t trust the Health System to honour them.

Technology can keep a person alive indefinitely – if breathing, eating and passing of bodily fluids by artificial means, can be described as “alive”, but there are those of us who don’t want to exist like that.

Steve Guest, in the SBS Documentary “Do Not Resuscitate” screened in November 2006 wanted to die at home in his bed. He wanted to die quickly, his brothers beside him. He permitted his final weeks to be filmed that his plight may touch the soul of the Victorian Politicians – but who will hear his message? And who will heed his call for legislative change? He was so tired and courageous suffering with cancer of the oesophagus. Such suffering should not go unrewarded as even in facing death Steve was optimistic about change for others. To be allowed to die like his dog, Jack.

Five Australians have chosen Switzerland but how many others go elsewhere to die, and their deaths are not recorded as a terminally or chronically ill suicide?.

Legislation should ensure Australians can die peacefully in their own country.

Mary Walsh
www.yourchoiceindying.com


Jan 28 2007

Profound thoughts for so early in the morning -

Tag: Diarymary @ 4:13 am

The heat woke me, along with my racing thoughts…last night when I wrote my friend’s letter I was still very emotional about my visit, the previous day. and was really trying to come down to earth understanding how very little I could do.  It is very confronting to have a grown person crawling around as the preferred method of transport just because it took the least effort.  We talk the talk, but until we’ve lived the life of the individual we cannot, like experiencing their pain, really come to grips which what life is like imprisoned in a non conforming body, with a sharp brain and clever wit.   It is so much worse than being unconscious and the not knowing -  to having the capacity to really understand the bleakness of one’s future on those circumstances.

A couple of years ago I used to have contact with a local Councillor who has since retired.   She too has an excessively sharp brain together with multiple sclerosis.  Because I knew her only in a professional capacity I no longer have contact or see her around and wonder often where she is at,  herself.   I could think that her level of disability is not at the level of my letter writing friend, but equally her brain is on a par……I wonder whether it is like I used to be as I hopped in agony with nerve damage in my feet to be   -   so very grateful to at least have a foot to be sore, because others didn’t have one at all?

And I keep remembering the lady on Flinders Street Station with both Parkinson’s and MS and my letter writing friend said she was so much worse off because of her double health catastrophe.     Both people found their representative organisations less than helpful because of their grave incapacities, both thought they were seen as an embarrassment to be hidden.  Their obvious circumstances were so very severe, they frightened the newly diagnosed, at a time when the Administration were trying to put on a positive spin about outcomes.    You know, a bit like when we age, everyone wants to think we play golf, and bowls, and travel endlessly when the majority of us have great difficult just getting out of a chair.   

Along with the positives of ageing,  while healthy – Governments tend to ignore the practicalities of the living while unhealthy.

Profound thoughts for so early in the morning -

but onwards and upwards, I have the joy of minding three little grandsons for the day…..and with 31 deg. there may even be ice-cream in the offering…..with Poppy, after a hard day’s golf,  tasting it along with the boys just to ensure its freshness of course……       


Jan 27 2007

My respects and thanks go to the family of Dr John Elliott

Tag: Diarymary @ 1:00 pm

My respects and thanks go to the family of Dr John Elliott who allowed their story to be told.

Three articles from the Sydney Morning Herald:

My name is Dr. John Elliott and I’m about to die,  with my head held high:

James Button
January 26, 2007
Article 1 of 3, each pertaining to the story of Dr John Elliott, an American living in Australia who went to Switzerland to die:

His wife holding one arm, his other hand leaning on a stick, he walks slowly across the hotel lobby. She is in tears, he is calm. His breathing is laboured but his eyes are bright. It is 8.30am on Thursday, and in an hour John Elliott expects to be dead.

“I’m squeezing your arm too tight, I’m sorry,” he says. She tells him not to worry.

It is minus 5 degrees outside in Zurich and she knots a white scarf around his neck. As he walks out the door he breathes and says faintly: “I’m free.”

The taxi drives a few blocks to a snowy, suburban street. In the ground-floor flat of a plain, four-storey building they meet a male nurse and a female social worker.

They sign documents. Dr Elliott, from Rose Bay in Sydney, takes a preparation to prevent vomiting. The nurse, Arthur, mixes a drink containing the barbiturate sodium pentobarbital and water.

As they wait 30 minutes for the anti-emetic to take effect they drink a cognac and chat. Arthur says he is from Davos, in the mountains. Oh, Dr Elliott says. He and Angelika used to go to the nearby village of Clavedel. They had so many happy days there.

With a video tape rolling, for legal purposes, Arthur asks Dr Elliott whether he realises that if he takes the drink he will die. Dr Elliott says he does.

“You can opt out at any time,” the nurse says, several times.

“No,” says Dr Elliott, an American-born doctor who never practised in Australia.

“I just want to get going. Hurry up.”

About 10.10, sitting in a chair, Angelika holding his hand, he drinks. “It’s not bitter at all,” he says, surprised.

He has another cognac. His wife hugs him for the last time in 34 years of marriage. He starts to look drowsy, then his head nods forward, like any person falling asleep. In 15 minutes he is dead.

Dr Elliott spent the last hour of his life as he spent his last three months, unflinchingly determined to die.

On Thursday the 79-year-old became the latest in a line of Australians – including Max Bell, Bob Dent, Janet Mills and Lisette Nigot – who have made their deaths public in the hope of forcing a change to Australian laws on euthanasia and assisted suicide.

“My name is John Elliott and I am a medical doctor from Sydney,” begins a statement he handed to the Herald two hours before his death.

“I am dying of multiple myeloma. Because of my illness I have come to Zurich in Switzerland to use the services of the dying-with-dignity organisation, Dignitas.

 **footnote from Choice: Let’s also remember, Steve Guest and his brothers, of Victoria, who also made his death public that the Australian community continues to be informed of the downside of “living” with crippling disease.  His story was perpetuated in the Australian SBS Documentary, Directed by Davor Dirlic  “Do Not Resuscitate”.

——————————–

The last goodbye


January 26, 2007

John Elliott was in pain and wanted to end his life. He also wanted to make a statement about the choice to die and so invited James Button and photographer Kate Geraghty to document his final journey.

Other related coverage
* My name is Dr John Elliott and I’m about to die, with my head held high
* With wife and friends, doctor was not alone on extraordinary final journey

A flight from Bangkok has landed at Zurich airport, and in the arrivals hall travellers in bright holiday clothes are hugging loved ones, grinning and holding babies. In the midst of the happy scene an elderly man is wheeled through the door and into a taxi. John Elliott has not come home and is not on holiday. He has come to Switzerland for a different reason. Accompanied by his wife, Angelika, the 79-year-old Sydney man goes straight to a hotel.

A phone call is made to Dignitas, a Swiss organisation that helps seriously ill people commit suicide. Papers must be obtained, and a doctor must confirm that he is seriously ill and sound of mind before Elliott can get what he says he wants more than anything in life: the date of his death.

Elliott, a medical doctor, has multiple myeloma, or bone marrow cancer. A tumour in his back is pressing on his spine, causing him excruciating pain. An enlarged prostate presses on his bladder and can force him to urinate every 15 minutes. He has Sjogren’s syndrome, which dries the glands in the eyes and mouth, making swallowing difficult. He keeps an oxygen bottle by his bed as he says his occasional sleep apnea, which stops his breathing, could kill him. His hands shake, he struggles to walk. He says he hallucinates; at times he struggles to remember his thought. His hematologist, Sam Milliken, at Sydney’s St Vincent’s Hospital, writes that Elliott “may be entering the terminal phase of his disease”.

In 2000 the act of reaching for a phone on the wall collapsed a vertebra in Elliott’s back. Tests showed he was suffering from multiple myeloma, which among other effects makes bones brittle and liable to break.

His wife, 20 years younger, gave up her job running a Woollahra antique shop to care for him. After nearly seven years she is exhausted.

“We can’t go to a movie, or for a drive,” she says. “All the everyday nice things have gone. All I do is fill out prescriptions for a nurse. It is death, illness, drugs and suicide. My friends say, ‘Come over.’ I say, ‘I can’t.’ It’s a nightmare. I just want to have a normal life again.”

But it wasn’t until November, when the pain grew intolerable, that Elliott decided he could not go on. Milliken suggested his patient have radiotherapy to alleviate his pain. Elliott initially refused, wanting no more treatments, but agreed after realising that with it he might be well enough to travel to Switzerland.

Thinking it would be the last time he would be able to fly, the couple booked a flight to Zurich. They also bought tickets for the Darwin doctor and longtime euthanasia campaigner Philip Nitschke and his partner, Fiona Stewart, who had agreed to accompany the Elliotts.

                                              _____

With wife and friends, doctor was not alone on extraordinary final journey

Fiona Stewart
January 26, 2007

Other related coverage

* My name is Dr John Elliott and I’m about to die, with my head held high
* The last goodbye

LIKE most 40-year-olds, I had never seen a dead body. That was until 10.30am on Thursday, when I was one of the honoured few to attend the legal, assisted suicide of the Sydney doctor John Elliott in Zurich, Switzerland.

On this January morning, John’s wife, Angelika, Dr Philip Nitschke and I watched as John sat peacefully in a chair in a bright sunny room, admiring the snow flurries outside. With the mandatory paperwork complete, I watched, too, as he drank a very small glass of the lethal barbiturate sodium pentobarbital.

In response, and as he wanted, we clinked our glasses of cognac in honour of this tall, proud man. John was asleep within minutes, dying shortly after.

A death such as this is what happens in a modern country such as Switzerland, where civilised laws are used every day to allow people to die with dignity. A death like this is what can happen when a terminally ill Australian makes an extraordinary last trip to the other side of the world.

Seriously ill with cancer of the bone marrow, John knew it was only by coming to Switzerland that he would have any say in when and how he died. He knew also that if he didn’t make the trip in late January it would be too late. He would be too frail to board a plane.

Worse than this, he would find no airline that would take him as a passenger. Airlines are never keen to take terminally ill patients on one-way trips halfway around the world.

As a doctor, John knew if this happened he would be stuck. Stuck in Sydney. Stuck in a hospice, high on morphine. Stuck with his life, death and freedom beyond his grasp.

And so in the weeks after Christmas I, like the others, rejigged my schedule to assure John of his final wish – to relieve his pain and suffering, and die peacefully in his wife’s arms.

Called an “accompaniment”, John’s visit to the Dignitas service was not without difficulties. When we left Australia he had no firm appointment. Dignitas told us it was booked until mid-February. Dying well, it seems, is big business and because Dignitas is the only place in the world where foreigners can be clients, its full program is understandable. Holland, Belgium and Oregon do not cater for non-residents when it comes to dying with dignity.

In this regard Switzerland’s laws are unique. Since the 1940s assisted suicide has been legal, as long as your motives in assisting are not “selfish”. This is why Switzerland is now seen as an exemplary modern civil society in an otherwise uncivil world; a world where we are living longer and suffering an increased array of diseases and conditions due to our longevity. And a world where our political institutions are increasingly swayed by the long arm of the church.

For reasons such as these, Dignitas appeared as the perfect option for non-believers like John and Angelika Elliott. The service was an ideal way to bring a close to John’s years of illness and suffering.

Fully supportive of his actions, Angelika nevertheless boarded the plane from Sydney with a heavy heart. She told me this was not the same man she married 35 years ago. She told me of John’s gradual deterioration, his anxiety about how death would come upon him and of his tears when Dignitas agreed to accept him as a client.

Angelika told me of her fear that in doing the right thing, in helping John go to Switzerland, she might run foul of the law. Having researched the Dignitas service, she was aware of the ordeal that a British woman, Win Crew, was subjected to when she accompanied her sick husband, Reg, to Zurich in 2003. Angelika knew Win had been threatened with being charged with Reg’s assisted suicide, because she helped him onto the plane, travelled with him and held his hand at the end. While she knew the charges against Win were never pursued, she is now wondering about the reception that awaits her when she returns home next week.

For that matter, will I find my own actions scrutinised by Australia’s police? Did I incite this man to take his life? Did I provide moral support by being present? That is the question posed by the 21 people who sat with Nancy Crick in 2002. That is the question the Queensland Government left unanswered.

In travelling to Switzerland with John, I hope my presence was supportive, not in encouraging John’s final exit, but in assuring him of the dignity of his choice.

In the last days of his life John spoke often of his scientific curiosity and the “a-ha!” factor. As in so much of his life, this fascinating, stimulating, challenging man wanted to know more, what life and death were really about. I hope his “a-ha!” moment was a good one.

Dr Fiona Stewart is the co-author, with Philip Nitschke, of The Peaceful Pill Handbook and executive officer of Exit International.


Jan 24 2007

Peaceful Pill Handbook

Tag: Diarymary @ 11:02 am

Note: Dymocks are stocking the Peaceful Pill Handbook nationally, Sydney – Gleebooks, Glebe,  Melbourne – Polyester Books, Fitzroy and Adelaide – Imprints Books, Adelaide. (A review by DWDV is available under Additional/Related Readings/Books)

                                                      ___

In Philip’s Editorial he points out the energy sapping disadvantages of technicalities a dying person must face if they hope to use the limited global advantage of dying well overseas.  Doctor Nitschke words tell the story “At the very moment when a person is most worn down and most vulnerable they find they must perform through the hoops of bureaucracy”…. 


Jan 24 2007

Why has this legislation taken so long?

Tag: Diarymary @ 8:45 am

According to the February 2007 The Seniors Newspaper, there is further activity on the Nursing Home front with two Government initiatives:

The Federal Government Minister for the Ageing, Senator Santo Santoro has announced that Police Checks on staff working in nursing homes will be compulsory from March 1st, phased in to cover new staff and volunteers, eventually all staff will be included.   In addition contractors who have unsupervised access to clients.   It includes staff employed through Agencies.

The new rules will prelude any person with a conviction for murder, sexual assault and any other form of assault (which resulted in a prison sentence) being employed within an aged care facility.

The actions followed complaints that three women have been sexually assaulted in Victorian nursing homes.

The Federal Government’s $100 Million response included:

  • A new Office of Aged Care, Quality and Compliance
  • Strengthening powers to investigate complaints against aged care providers and staff
  • Appointing a new Aged Care Commissioner to oversee the Complaints Scheme
  • Compulsory reporting of abuse of the elderly by aged care staff
  • Whistleblower protection for those who pass on information about abuse
  • Unannounced spot checks by the Aged Care Standards and Accreditation Agency on each aged care home, each year.

(Choice asks: if this is all just happening now in an election year what has the Minister for Ageing been administering these past ten years?    No wonder people are dragged into nursing homes kicking and screaming against the idea.   I for one had no idea that the Nursing Home industry was in effect,  just self regulated!   Why has this legislation taken so long?

Personally I feel people with a history or employment record for minimal violence should also be excluded…..Smacking an old person’s face would not get a prison sentence but cowers the elderly into suitable submission for any future physical abuse.   The action is also mental abuse.  Screaming at an old person for dropping their food is also abuse by bullying which wouldn’t get a prison sentence but would make the person feel intimidated.  It is not only the frail elderly at risk either in nursing homes – , it may be infirmed others,  living in their own home, abused by carers.  Last year I failed in my attempts to get an elderly person, or their relative,  to complain about a Church Home because of ramifications arising out of fear .   Shamefully I admit to not wanting to pick up the cause.  Knowing myself I would definitely become too emotionally involved as I do, when the strong seek to overwhelm the weak.   It is a failing of mine from childhood.   I absolutely abhor bullies, but particularly more so when sanctimonious  “Christians” religious are involved.)

COTA Over 50s has welcomed the police checks and describes them as long over due (we had them in Victorian schools 10 years ago) saying elder abuse was a pernicious form which often goes undetected .  It can include physical, sexual and financial.

The Victorian State Government has signed an agreement with not-for profit aged care provider Churches of Christ Community Care to provide an additional 90 bed aged care facility in Preston.  The City of Darebin has the eighth biggest population of people aged 70 plus.  I trust someone will remind the Upper House MP Jenny Mikakos that the quality of service to the individual resident is even more important than the regulations governing building standards.   Perhaps people were better off with the smaller more domestic type nursing homes that had the character of a private home and more personal friendly service.  I have always been an advocate for the thought that Bigger is Not Necessarily Better.   Old folk just get left sitting in more luxurious surroundings but still with no sense of worth or personal belonging.


Jan 23 2007

failure is when you fail to act, not when you fail trying

Tag: Diarymary @ 10:05 am

As I pondered over my letter writing exercise this past two days a thought came to me as I was preparing tea…..failure is when you fail to act, not when you fail trying.   I’ve still a couple more to write and so I will keep that thought with me!   God I hope I sleep tonight…perhaps just one little white pill….I deserve it…I’ve earned it…..(??)


Jan 23 2007

I want to change the world.

Tag: Diarymary @ 4:15 am

My problem, of course, is that when I see an injustice, I want to change the world…because I am not God – or the Prime Minister – this is not within my capabilities – therefore I lie awake in the night hoping but knowing that I personally can do nothing!….now common sense tells me it is not my problem and I should sleep accordingly but we all know that life doesn’t let us off that easily.

I am thinking about David Hicks and am appalled at our Government’s ongoing and relentless ignorance of his situation.   A man purported to be so evil five years ago, he was transported not to Australia (because there was no crime applicable here) but to America’s custody where he has been treated with the same distain they reserve for their Black, Mexican and poor people.  Lost and forgotten in the System – by the time he eventually gets returned to Australian soil under a Labor Federal Government David Hicks will most likely be a broken mental wreck if the television pictures tell a thousand words…..

David Hicks is a man accused and sentenced without ever having the benefit of a lawful trial in front of an impartial jury.  No matter how innocent he may have been five years ago when a fresh young convert, he is guilty now in the eyes of many – because “if he was found sharing coffee with a group of Islamic extremists -   or just sitting on the ground next to the building they occupied -  he is guilty because American soldiers say he is”.    

I feel very strongly about this evidence of injustice because as a very young woman of 22 my driver was accused by another motorist of speeding and hitting a young 10 yo child who’d hopped off the tram and ran around behind it without looking and into the path of our moving car on the other side of the road.   The girl went up over the bonnet and, as one does,  I felt really ill with the experience.    I was 8 months pregnant at the time, yet I ran, ungainly and heart thumping,  like mad to the local police station some two blocks away,  while the girl was attended to by passersby.  The “witness” said he had followed us speeding down Clarendon Street, which was impossible because I had just been picked up in Moray Street (South Melbourne) 5 minutes before from my workplace.  All this could be verified and I was nonplussed as to why the “witness” would lie about perfect strangers in such a convincing fashion.  Had we come from the city we would have been in strife with this adamant witness to our “crime”.  Being a child, the onlookers automatically blamed our careless driving without caring about the truth, -  the “witness” was holding Court in Clarendon Street. Because we were in fact going very slow in busy traffic the child sustained only bruising but I still bought her a book (meanly) on Road Safety for Children.

The policeman explained to us very kindly, not to stress ourselves as it was quite common for witnesses, to lie blatantly,   to want their “five minutes of fame” and “weren’t too fussed about how that happened“…..How many documentaries have we seen where innocent people have been brutalized by the “Justice System” only to be found innocent after the encasteration.   Mud sticks and for our Australian,  David Hicks I feel he is smothered in it -  by the experience of American hospitality.   No matter what happens in the future, his life is mostly ruined unless he is a remarkable survivor and will spite all of those God Fearing Christian politicians who have smugly left him chained in Guantanamo Bay.   One wonders whether he will ever believe in Almighty God again!

_____

In the Sunday Herald Sun (21st) there were a number of interesting articles relating to Nursing Homes, Mobile Phones, and the “healthiest” area in which to live in Victoria

According to the article written by Chris Tinkler, more than 70 Victorian Nursing Homes – housing about 3800 of the State’s elderly – have been failing minimum standards.  In 2006,  74 homes failed one standard, but 33 failed in at least one of three key areas -staffing, clinical care and medication management. 

I wonder how many politician’s family members were among those particular nursing homes detailed in the Minimum Standard Report.  In keeping with the 5% not helped by Palliative Care, I wonder which politician would come forward and take the place of any one of the 3800 residents who were,  not only maintained “well”,  but not even to meet “minimum” standards of care.  

The stench of urine in one nursing home I visited was a little overwhelming and yet the nursing homes involved in the report were not listed in the article so I won’t know if that particular one was earmarked.   What defines “minimum”? and why is Victoria particularly badly placed in a Federal area of responsibility?    It is pointless having beautiful garden surrounds and lavish furnishings if the people themselves are neglected.  How many of the 3800 would choose voluntary euthanasia given half a chance? And why not ask them, what they would want for themselves?.   Because the authorities don’t want to hear the answers, too many big business ventures at stake – the resident, along with hospital patients are the least considered in the chain of where “wants and needs” are focused.

Auditors found residents may have been left in unnecessary pain due to mismanagement of medication.   Residents were not provided with exercise, physiotherapy and “challenging behaviour” did not get psychiatric help.  Staffing was inadequate and patient files incomplete.  (my observation is that disabled physically and disabled mentally residents are frequent put together side by side, with no where to go -  where neither person enjoys the experience)

One complaint was of a 98 year old whose sheets were not changed for a month!!!  Wide spread theft and relatives providing food to undernourished patients were also in the Auditors Report.

Victoria accounts for almost half of all the country’s agency sanctioned homes.   We are reassured by a spokeswoman for the Federal Minister for Ageing – Senator Santo Santoro who tells us the issues were isolated and “they’re working on them”.

The Nursing Homes  (from memory) included quite a number of Church operated homes and one has to ask the question.   Why is it so terrible that the frail elderly cannot be permitted to die by medical assistance and yet they are forced to live (because they’re frequently immobilized  by illness or medication) in Sub standard conditions.

To many,  entering a Nursing Home is to be sentenced to a slow lingering death by neglect of both body and spirit.   As their lives are of no value to anyone else,  except the owners of the Nursing Home as a money making commodity -  why can’t an aged or seriously disadvantaged ill person be allowed to die with dignity, sooner rather than later.  

Why can’t they be given THE CHOICE about what they want to happen to them?   Some would choose to exist as circumstances provide, while others would choose voluntary euthanasia.   As the question has been asked a thousand times – when there is no hope of improvement in a person’s slow demise into dying and death, what is the purpose of further treatment.  At least by allowing choice, everyone’s needs are catered for……

I would rather be dead than in a Nursing Home no matter how well operated it was because there is no hope of recovery from there,   along with most of the population I could imagine, life would have to be about more than just eating and sleeping.  Quality is paramount. 

By definition “nursing” homes are the ultimate acknowledgement of life’s ending and we should have choice about whether we want to continue existing under the “Minimum Standards” based on the Age Care Standards and Accreditation Agency or die early.   The fact that one is put into a Nursing Home means they’ve arrived at a period in life where the very purpose of life becomes crucial to the individual.

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Mobile phones are again making the news about their likelihood being linked with brain cancer, Parkinson’s and Alzheimer’s.  200,000 Brits will participate in a 5 year study, which is vital because the effects of cancer often take 10 years to manifest itself.  We told, in a piece written by Fiona Hudson (pg 15)   that mobiles are a smoking gun.   Asked whether phones could turn out to be the 21st century health equivalent of cigarettes, Prof Challis replied, “Absolutely”……Their use was Ok for very short term period but the data is indicating a problem for people who used them longer than 10 years….. A further separate study is being undertaken on the effects for children.

These findings will effect the rich, (worrying about their wealth) the powerful (looking to making their next deal) and the famous (checking out who is getting more media coverage)  long before the poor and disadvantaged (just surviving life itself).

____

                                                                             

And for those of us living in Victoria, on page 18 of the same paper we’re told by Suellen Hinde in a comprehensive article that advises Morwell, East Gippsland, Maribyrnong and Ballarat were among the unhealthiest places to live……This would be correct as they are all areas dedicated to production of power. food (farms)  and industry pollution.   People work hard in air laden pollutions, but hey, we’re still living to 78 years something…as distinct from other parts of the world where some don’t make it to 50 years old…..and then if you lived in Africa or the Middle East you really don’t have to worry about the horrors of nursing homes or mobile phones….you have wars to ensure old bones won’t be a problem.

For the record Manningham, only 12 klm from Melbourne’s CBD is the healthiest.  It includes suburbs of Bulleen, Doncaster, Park Orchards, Tempestowe and Warrandyte.   They are very leafy suburbs well serviced by open spaces.  One gentleman interviewed at 67 walks 50 km a week along the Yarra River……With a strong sense of community, its population includes many older people.

My own district of Glen Eira came in at 1 year below at 81.2 y o…..I can live with that…..knowing I won’t have to worry about it.


Jan 21 2007

Does it follow then that the euphemism for murder is war????

Tag: Diarymary @ 5:12 am

“Many of these phrases are intended not to offend people with disabilities. A man is not crippled, he is “physically challenged.” A person is not deranged or retarded, they are “mentally challenged.”


I live in a wheelchair because of multiple sclerosis so I’ve heard it all. I’m “mobility challenged,” “physically challenged,” “differently abled.” While I appreciate the desire of others not to hurt my feelings or offend me, euphemisms get tiresome and make language clumsy. We live in an age of euphemania!

“Anyone who kills a human being, himself or another, is guilty of murder.”
- St. Augustine

This is part of a Catholic Canadian Article written by a  Mark Pickup, that I have put into the Additional/Related Reading/AntiVe for obvious reasons when you read the article…..which is about euphemisms we need to use because totally unambiguous language like ‘voluntary euthanasia” is no longer socially acceptable.  I agree with the man’s “tiresome” tag!

Mr Pickup again hones back to the NAZI war crimes in relation to Jews & handicapped people, but has conveniently forgotten to “pickup” the Spanish Inquisition and the Crusaders, the Catholic’s Church’s own personal history of euphemisms.    All religions have their fair share of murder by another name.

Personally I am not a person who uses euphemisms preferring the blunter more open approach, but that is a personal preference and one that comes with responsibilities.  When I use plain English I am sometimes made aware that this has impacted on the other person in a negative way, leaving them facing the cruelty of  the grim reality in which they find themselves.   Even when I was extremely ill and mouthed the reality for me at the time, that I was going to die soon to my friends and relatives…..there was always a pregnant pause of discomfort.  Some people just deal with their dramas differently and Mr Pickup hasn’t really understood that yet…a word that he fails to understand is “compassion” because he is so very busy reminding the “Faithful” of the wrath of a cheated God should one not be able to sustain the distance in suffering.

I can’t help but wonder as Mr Pickup sits permanently in his wheelchair suffering from multiple sclerosis, which I’m told is not necessarily an extremely painful disease, but rather more disabling -  in mobility -  how he would feel if he had a very painfully disabling disease.   He mentions cancer but doesn’t apparently speak from first hand experience.   My brush with cancer was not the same as the 10 people in the same workshop who’ve died since.   Even excessive exhaustion can tire one beyond endurance, not terminal within itself but leaves the body feeling like it could be.

And me, being me, could not let St Augustine’s words go unaddressed.   He is reported as saying

“He who kills a human being, himself or another, is guilty of murder”

Does it follow then that the euphemism for murder is war????

As a Humanist I have no problem with using the word suicide for voluntary euthanasia because I am totally comfortable with the idea of dying by my own hand – I have more trouble with the idea that someone else should die by my hand…

Hence I am a Pro Choice for the Individual and Anti War.  I believe where possible we should prepare to help ourselves involving no one else in our deaths.  I don’t profess to be anything other than blunt, Mr Pickup.  I won’t “pass away”, or “go to a better place”, or “die in the Grace of God”, “or go to meet my maker”, “or be happy in eternity looking at the face of God”   I will die and be dead!

How does a “Man of God” Christians generally,  equate the killing of Iraqi people as different to murder because St Augustine did not pull any punches in his pronunciations…..How does Mr Bush and Mr Howard, both “Christian Men” settle their conscience – knowing there was no ambiguity in the 10 Commandment  “THOU SHALT NOT KILL.”   .

I don’t have a conscience problem at all, because I believe only in myself and medicine…but people such as Mr Pickup must be terrified of dying and facing this wrathful God he speaks of,  because of the sheer hypocrisy of the way many Christians live their lives -  as distinct from the Dogmas of Faith handed down for them to abide by -  or perish in Hell forever more…..


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